Frequently Asked Questions
What is Virtual YOU Day?
Virtual YOU Day is an annual virtual event that promotes awareness of dystonia, connects the dystonia community, and supports the work of the DMRF. The event includes virtual components that reach people in all 50 states. By bringing together medical experts, public servants, and members of the dystonia community to share their stories and raise awareness in a relaxed, community-focused environment, Virtual YOU Day provides individuals and families affected by dystonia, their friends and colleagues, and medical professionals, the chance to learn and connect.
What is Dystonia?
Dystonia is a rare brain disorder that causes extreme muscle spasms so intense they produce involuntary movements and postures of the body and limbs. Gait, balance, speech, and vision may be impaired due to the twisting, painful contortions. Put quite simply, people with dystonia cannot control the movement of their own bodies. The disorder affects people of all ages and backgrounds. Because it is often misdiagnosed, patients can spend years without proper treatment. You can help the DMRF change this.
How does the virtual event work?
This is an event that will take place online - right here at this webiste - rather than in a physical location. After registering, you will receive a link to join the program which takes place at 7 PM ET on September 30.
Who can participate?
Everyone is welcome to participate on the day of the Virtual YOU Day. Registration is FREE, but is required so we can send you the access link. Donations and sponsorships to support the DMRF's mission are encouraged!
I want to mail in a donation. What do I need to do?
If you would like to donate by check, please make the check out to DMRF with a check memo to include Virtual YOU Day and mail to Attention: Virtual YOU Day, Dystonia Medical Research Foundation, One East Wacker Drive, Suite 1730, Chicago, IL 60601-1980.
Is my donation to the Virtual YOU Day tax-deductible? 
Yes, Dystonia Medical Research Foundation is registered as a not-for-profit, 501(c) (3) organization under the Internal Revenue Code, therefore all donations are tax-deductible as allowable by law. The DMRF’s Tax ID Number is 95-3378526. And, you can give with confidence, as DMRF maintains the highest ratings from charity-rating organizations, Candid and Charity Navigator.
Who should I contact with questions about Virtual YOU Day?
Please contact the DMRF at events@dystonia-foundation.org or 312-755-0198.